National Eye Institute (NEI)
31 Center Drive MSC 2510
Bethesda, MD 20892-2510
Conducts and supports research on eye diseases and vision disorders. Offers free publications for the general public and patients.
National Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050
Disseminates information about Marfan syndrome, a genetic disorder of the connective tissues in which dislocated lenses, cataract, and retinal detachment are ocular symptoms. Provides a communication network for patients and their family members. Supports and encourages research. Publishes The Marfan Syndrome, a comprehensive booklet on the disease, and A Guide for Eye Care Professionals.
For more information about IOLs, contact:
U.S. Food and Drug Administration
Office of Consumer Affairs
Parklawn Building (HFE-88)
5600 Fishers Lane
Rockville, MD 20857
For more information about low vision services and programs, you may wish to contact:
American Academy of Ophthalmology
P.O. Box 7424
San Francisco, CA 94120-7424
Represents board-certified ophthalmologists in the United States. Offers public information materials and clinical education programs in a variety of formats. Offers a Find a Doctor service on their website to help people locate local board-certified ophthalmologists.
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001-2006
Serves as a one-stop information and referral resource for people who are blind or visually impaired, the people who work with them, and the general public. Conducts a wide variety of programs to support independent living, literacy, employment, and access to technology. Publishes professional materials for blindness and low vision and Talking Books. Offers consultation services to eye care, rehabilitation, and education professionals. Provides referrals to low vision centers. Advocates for legislative change.
American Optometric Association
243 N. Lindbergh Boulevard
St. Louis, MO 63141
Represents optometrists in the United States. Provides brochures on eye problems for the lay public and professional materials on eye care delivery. Offers a Find a Doctor service on their website to help people locate optometrists.
Council of Citizens with Low Vision International
Serves as an advocacy group for the visually impaired. Provides information on low vision technology. Offers scholarship. Publishes the CCLV News.
111 East 59th Street
New York, NY 10022-1202
(212) 821-9713 (TDD)
Serves as a national clearinghouse for information on vision impairment across the life span including specific services for children and seniors. Offers a comprehensive selection of educational products, large print materials, talking products, and related specialty items for people with visual impairments. Offers reading and library services, employment and recreation resources, and technology centers.
National Association for Visually Handicapped
22 W. 21st Street, 6th Floor
New York, NY 10010-6493
Serves as a clearinghouse for information about all services available to the partially-sighted from public and private sources. Conducts self-help groups. Provides information on large print books, textbooks, and educational tools.